Your Stories

Welcome to the Heart of the Fight: Our Stories

Hidradenitis Suppurativa is a disease that thrives in the shadows, feeding on our silence and isolation. For too long, it’s made us feel like we’re the only ones, that we’re broken, that our fight is invisible. This page is the end of that lie.

These are not just stories, they are raw, honest, and unfiltered accounts from the real faces of this disease—the warriors who get up every single day and refuse to be defeated. This is a place to show the person, not just the patient. By sharing our truth, we prove that we are not alone. We build a community. We shatter the stigma, one story at a time. This is where we show the world what it truly means to live life with HS.

Share Your Story and Join the Fight. Your story is a powerful weapon. It has the power to make someone else feel seen, heard, and understood. If you are in the UK & Ireland and are ready to share your experience, we need your voices, please.