Living Life With HS
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Lived voices · UK & Ireland

Your Stories

Welcome to the heart of the fight. These are raw, honest accounts from people living with HS — the person, not just the patient. Sharing our truth proves we are not alone, builds community, and chips away at stigma, one story at a time.

Your turn

Share your story

Your story is a powerful weapon — it can help someone else feel seen, heard, and understood. If you are in the UK & Ireland and ready to share, we need your voice, please.

Share your story

Warrior stories

Click a face to read their chapter. Use the arrows to move through the carousel.

Alana’s Story: Stage 2 HS Warrior from Aberdeen

Alana’s Story: “My scars are only skin deep” Get To Know… Alana Name: AlanaAge: 39Location: Aberdeen, ScotlandBattling HS for: More than 20… Read story →

Pete’s Story: “You Can Control How You Support Your Body”

Pete’s Story: “You Can Control How You Support Your Body” Get To Know… Pete Name: Pete Age: 46 Location: East Kilbride, Glasgow… Read story →

Taylor’s Story: Turning Pain Into Purpose

Taylor’s Story: Turning Pain Into Purpose Get to know… Taylor Name: Taylor Age: 41 Location: Massachusetts, USA Battling HS For: More than 20 years Current Stage: Stage… Read story →

Nat’s Story: “Pain Doesn’t Make You Weak”

Nat’s Story: “Pain Doesn’t Make You Weak” Get To Know… Nat Name: Natalie (Nat) Age: 36 Location: Bristol. Battling HS For: More than 20 years Current… Read story →

Sammi’s Story: “It’s Okay to Ask for Help”

Get to know… Sammi Name: Sammi Age: 41 Location: Isle of Man Battling HS for: More than 20 years Current stage: Unsure/It… Read story →

Kerrie’s Story: Resilience Is a Not a Choice

Read the raw and honest story of Kerrie's 20-year battle with Stage 3 HS, from medical gaslighting and MRSA to her ongoing… Read story →

Lauren’s Story: The Power of Knowledge

Read Lauren's HS diagnosis journey in the UK. A raw and honest account of fighting for answers, the reality of a 'bad… Read story →

Gareth’s Story: The Man Behind the Mission

This is one of the rawest HS stories for men. The founder of Living Life With HS shares his 20-year battle with… Read story →

Beth’s Story: “If People Don’t Like It, That’s Their Problem

Beth, a 32-year-old HS Warrior from Kent, shares her 15-year battle with Stage 2 HS. Read her story of the daily struggles,… Read story →

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